Guests: Lois Curtis, a disability rights activist, visual artist, and public speaker
Petula Golden, Ms. Curtis’s companion and supporter
Host: Peter Blanck, Ph.D., J.D., Chairman, Burton Blatt Institute, University Professor, Syracuse University
Recording Date: July 22, 2022
Archive: A Conversation with Lois Curtis
Contents
- About the 504@50 Podcast Series
- About This Episode
- Life of Lois Curtis
- Lois Curtis Videos
- Honoring Lois Curtis
- Learn about the Olmstead Supreme Court Decision
About the 504@50 Podcast Series
504@50 is a special interview series created in recognition of the 50th anniversary of the signing of the Rehabilitation Act of 1973. In the series, we speak with leaders of the disability rights movement who advance the cause of equal rights through their tireless work.
The 504@50 Series is produced by the Southeast ADA Center, the Burton Blatt Institute at Syracuse University and in collaboration with the Disability Inclusive Employment Policy Rehabilitation Research and Training Center. Check out the Section 504@50 website at section504at50.org
About This Episode
In her last interview before her passing, Lois Curtis talks with Dr. Peter Blanck about her experiences as a pioneer in the deinstitutionalization movement. Ms. Curtis, the original plaintiff of the landmark Supreme Court decision, Olmstead v. LC, was placed against her will in a Georgia state psychiatric hospital for 17 years. “Deinstitutionalization” means moving mentally disabled people from public or private institutions, such as psychiatric hospitals, back to their families or into community-based homes.
Ms. Curtis discusses the long and bumpy road of navigating systems and stereotypes to eventually win her freedom and make her own choices. She describes how she was fighting for her personal rights and freedom, and how her legal fight became a symbol for deinstitutionalization of people with disabilities.
Life of Lois Curtis
Lois Curtis wrote this in 2010:
“To all the people living in institutions:
I remember you. Give me a prayer.
Sometimes I feel good about my life.
When I feel bad about my life I name my country, sing the gospel, and bring my mind back home.
I will sing with you again.
Have a beautiful day.
Love, Lois”
Source: American Association of People with Disabilities (AAPD) (November 6, 2022)
Link: aapd.com/press-releases/aapd-statement-on-the-passing-of-lois-curtis-lead-plaintiff-of-landmark-olmstead-decision
- Olmstead Champion Meets the President
Blog post written by Sue Jamieson on June 22, 2011.
Source: The White House Archives
Link: obamawhitehouse.archives.gov/blog/2011/06/22/olmstead-champion-meets-president - Lois Curtis Biography
Source: National Women’s History Museum
Link: womenshistory.org/education-resources/biographies/lois-curtis
Lois Curtis Videos
Note: All videos include captions.
- Lois Curtis – Black History & People with Disabilities
Recorded on February 28, 2022
Source: New Jersey Council on Developmental Disabilities (NJCDD) [1 minute, 32 seconds].
Link: youtube.com/watch?v=MuazzTxDnxo - Lois Curtis’s Story
Source: Olmstead Rights [1 minute, 42 seconds]
Link: olmsteadrights.org/iamolmstead/videos/item.5301-Lois_Curtiss_Story - Lois Curtis: Disability Rights in Black 2020
Source: National Disability Rights Network [14 seconds]
Link: youtube.com/watch?v=-3GwuG1dbZE - Lois Curtis Art Exhibit
Source: University of Georgia Institute on Human Development and Disability [2 minutes, 15 seconds]
Link: youtu.be/sKTq8Pwt7V0
Honoring Lois Curtis
- AAPD Statement on the Passing of Lois Curtis, Lead Plaintiff of Landmark Olmstead Decision
Source: American Association of People with Disabilities (AAPD) (November 6, 2022)
Link: aapd.com/press-releases/aapd-statement-on-the-passing-of-lois-curtis-lead-plaintiff-of-landmark-olmstead-decision - Disability Community Remembers Pioneering Advocate Lois Curtis
Source: Administration for Community Living (ACL) (November 4, 2022)
Link: acl.gov/news-and-events/announcements/disability-community-remembers-pioneering-advocate-lois-curtis-0 - Honoring a Life of Impact
Blog Post by Taryn M. Williams.
Source: U.S. Department of Labor (DOL) (November 4, 2022)
Link: blog.dol.gov/2022/11/04/honoring-a-life-of-impact - Disability Community Remembers Pioneering Advocate Lois Curtis
Source: Administration for Community Living, Office for Civil Rights, Office of General Counsel, and U.S. Department of Health & Human Services (HHS) (November 4, 2022)
Link: hhs.gov/about/news/2022/11/04/disability-community-remembers-pioneering-advocate-lois-curtis.html - Lois Curtis, Who Won a Landmark Civil Rights Case for People with Disabilities, Died
Source: National Public Radio (NPR) (November 5, 2022)
Link: npr.org/2022/11/05/1134426128/lois-curtis-who-won-a-landmark-civil-rights-case-for-people-with-disabilities-di - The Lois Curtis Award
The Association of People Supporting Employment First (APSE) created the Lois Curtis Award to recognize an individual’s personal achievement in advocating for inclusive, individualized, community-based employment and/or independent living.
Source: Association of People Supporting Employment First (APSE)
Link: apse.org/apse-awards-the-lois-curtis-award
List of 2022 APSE Award Winners – Including the Lois Curtis Award
Link: apse.org/2022apse-awards-winners
Learn about the Olmstead Supreme Court Decision
Supreme Court Case Citation: Olmstead v. L. C., 527 U.S. 581 (1999)
- Olmstead Decision Home Page
Source: U.S. Department of Justice (DOJ)
Link: ada.gov/olmstead/olmstead_about.htm - Olmstead Anniversary Resources and Information
The anniversary of the Olmstead U.S. Supreme Court decision is June 22, 1999.
Source: Southeast ADA Center
Link: adaanniversary.org/themes/june/#olmstead - Webinar: The Supreme Court’s Olmstead Decision and Its Far-Reaching Impact on People with Disabilities
Archived from the ADA Legal Webinar Series (September 21, 2022).
Source: Great Lakes ADA Center
Link: accessibilityonline.org/ada-legal/archives/111012 - Olmstead Rights
The Disability Integration Project of Atlanta Legal Aid Society created this website in collaboration with its partners and funders to be a place for everyone to learn about the Olmstead decision. The website also provides resources and information for self-advocates, family and friends of people with disabilities, and legal advocates alike.
Source: Disability Integration Project
Link: olmsteadrights.org - Olmstead Case History
Source: Disability Integration Project
Link: olmsteadrights.org/about-olmstead - Video: Olmstead Decision Explained
Source: Disability Rights Washington [3 minutes, 6 seconds]
Link: youtube.com/watch?v=C6c6gZEFQdg - Video: Olmstead: From the Case Toward Real Transformation
Source: Olmstead Rights YouTube Channel [34 minutes, 55 seconds]
Link: youtube.com/watch?v=oezulXzBt2k
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Visit the Section 504@50 website at: section504at50.org
The 504@50 Series is produced by the Southeast ADA Center, the Burton Blatt Institute at Syracuse University, and in collaboration with the Disability Inclusive Employment Policy Rehabilitation Research and Training Center.